cancel
Showing results for 
Search instead for 
Did you mean: 
Senior Contributor

Not happy

Not happy not happy not happy 

 

permanent disability no no one wants to face making it even harder

 

ever heard of vestibular?  Without it you might as well not be alive

0 Kudos
7 Replies
Frequent Contributor

Re: Not happy

No balance?

 

0 Kudos

Re: Not happy

Yes.  Try doing anything when you have no sense of balance or placement in space.  There are days it's a challenge to get on the toilet.  Doctors don't seem to have any answers.  From what I've read most people develop the problem after infections or even rough boat or plane rides.  Guess mine comes from the damage to my cerebellum after they removed the tumor.  Can't be fixed just coped with.  Eye and head exercises attempt to retrain the brain.

it is visual and auditory like sensory overload all the time.

plus the after affects to the left side of my body are kind of like post stroke.  Weakness and uncoordination that the doctors are not really addressing.

doesnt help me much that mu family more or less insist that I'm not trying.  Now visual problems are growing exponentially and I can keep almost nothing in focus.  

Haf eyes check post surgery and they said no change, but boy is there a change now.  But hubby says we have to deal with taxes first before he'll pay for another eye exam

frustrating frustrating 

0 Kudos

Re: Not happy

I ran across your message and want to suggest that you explore the AgrAbility program. Our focus is helping people with disabilities in agriculture. You can see if your state has an AgrAbility project and get contact information at http://www.agrability.org/contact-lists/. If your state doesn't have a project, contact the National AgrAbility Project at agrability@agrability.org.

0 Kudos
Senior Contributor

Re: Not happy

After my stroke last winter, I had frequent episodes of vertigo. If your problem is anything like what I experienced I feel for you. The vertigo disappeared but my vision is still missing the left field. The mecklazine (sp) helped a bit. It is for balance and dizziness whether inner ear, stroke, or brain trauma. Presumably they have you on it.
0 Kudos
Senior Contributor

Re: Not happy

Sorry, I just now read your earlier post after posting. Best wishes to you.
0 Kudos
Highlighted
Frequent Contributor

Re: Not happy

I can only imagine, it must be terrible. Oddly enough my wife and I were just talking about this this morning because she had taken our much loved dog to the vet for a check-up because she (the dog) suffers from it. When it first started we thought that she'd had a stroke by the strange way she was behaving all of a sudden, but the vet said it was this and that it's not uncommon in older dogs. It can be caused by many things but mostly they just don't know what exactly, although we do fear that she too may have a tumor in her brain. She's a lot better than she was a few months ago and many days she's perfectly normal, but then all of a sudden she will be really out of it, dizzy and stumbling and looking around like she sees or hears things. I'm just keeping my fingers crossed that she'll be able to live out a fairly normal life and we both try to keep her from overdoing on the days when she's feeling great and wants to play too much. I hope the therapy will help, dairy mom, and that you too will go into a bit of a remission from the symtoms so that you can function somewhat normally again. 

 

Btw, nice to see some of you ladies posting here again, I always used to find your discussions very interesting and informative.

0 Kudos
Contributor

Re: Not happy

dairy mom,

 

How are you feeling? Just wanted to check in and see how everything was going for you. 

0 Kudos